After 7 nights in hospital, Tim was able to leave but unfortunately not come home. As the boys and I were sick, Tim had to spend another 4 nights at my parents home until we were on the improve. It has been a very difficult time and even though Tim is now home, he is in the worst shape he has ever been. He is suffering constant nausea, head aches, dizziness (has almost fainted on me!) leg pain, stomach cramps....the list goes on. He has no energy and has finally lost his spark. It has been very hard/sad/devastating for me to see him like this......not even an attempt at a bad joke!! His spirits lifted slightly when finally allowed to see his children and also when he layed eyes on his beard. Doctors are baffled by his poor disposition as his blood counts are all up and rising..on paper he is ready to move on to the next phase of treatment. On Tuesday he will be reassessed. If there is no improvement in his well being he will be readmitted for observations and if he does improve he will recommence chemo this Thursday.
I have found an excellent medical website that examines Tim's exact condition. It also discusses and clarifies the dilemma over whether Tim has lymphoma or leukemia. As you will read, the World Health Organisation recently unified the disease as T cell lymphoblastic lymphoma/leukemia. This has helped us to understand why some doctors refer to Tim as having leukemia.
Please take the time to read the complete study: Background, Diagnoses, Treatment & Follow up. It is accurate, up to date and informative.
http://emedicine.medscape.com/
Love Andi.
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