Tuesday, May 31, 2011

Update 31/05/11

Hi everyone,

Can't believe this is my first update in 2011! Not a lot has changed since my last update. Tim is still going great. He has an appointment with Dr. Turner next week, so we will find out more news then, but we expect the good news to continue.

Tim has returned to work in a part time capacity this year which has been fantastic. He has gained back his strength and energy and is able to fulfill 3 days per week. He is pretty knackered by the Friday and certainly can't manage more than that at present, but he has come such a long way and it has given him a real boost. Considering he is still having chemotherapy daily, I think he is truly amazing. Actually, I don't know how he does it or how he managed to get through all the treatment he has endured. Some days I look at Tim being so active with the boys and think, 'My Goodness, he took methotrexate and mercaptopurine today, how can he even stand up?.' I often have to remind myself that he is still undergoing treatment. It can take me by surprise when he has a down day. He still does suffer from nausea, headaches and neuropathy and sometimes he just can't ignore the symptoms and must rest...which shocks me back to reality of a treatment protocol for acute leukemia. By the way, have I mentioned the completion date for treatment???? March 18, 2012!!!! Just under 10 months to go... Hooray!

The boys are great. Josh is still loving his basketball and this year has taken up guitar at school and started tackers for Eltham. Ben began 3 year old kinder and has taken up tennis.

I am back teaching two days a week and am completing my post-grad study this year, so life is busy, busy busy.

Will let you all know the outcome of Tim's visit with Turner next week.

The photo was taken at Joshua's 7th Birthday!

Hope everyone is happy and thanks for reading.

Love Andi


Tuesday, December 21, 2010

Hi everyone,

The good news continues...Tim saw his specialist a couple of weeks ago and his blood results have been pleasing. The daily treatment has affected his platelet count and his liver function, these are the only areas of concern, but are certainly expected and nothing to be overly concerned about at this stage. Tim has made remarkable progress and has been given the green light from the medico's to return to some part time work next year. This is very encouraging as it is another step towards leaving this dreadful disease behind us all. Really, the only reminder now is the fact that he has to pop chemo tablets everyday (and for Tim, he is still anxious that his hair has not come back properly). When I think back to Christmas last year, I can not believe all the goings on in the last 2 years. It really does seem like a bad dream now and we are all confident that the worst is well and truly behind us.

I want to wish everyone a very Merry Christmas and thank you again for the on going support you have given me and my family. We feel truly blessed and grateful to have Tim still here smiling, children who are thriving & happy and friends & family who have listened, cared, loved & supported us. In situations such as this, things can easily fall apart, but because of you all, we are united stronger than ever and happier then ever.

Have a wonderful festive season.

All my love,

Andi

Thursday, September 30, 2010

Update 30/09/10

Hi everyone,

Just wanted to let you all know of some further developments.

Yesterday Tim met with Professor Andrew Grigg at the Austin for his usual check up. Blood counts and tests are all good. As some of you might be aware, a bone marrow donor search commenced last year for Tim. This is protocol for acute lymphoblastic lymphoma/leukemia suffers, as relapse is a high possibility for most adult patients, and if it does occur a transplant is required immediately. As none of Tim's siblings were a match, a search was conducted nation wide and then overseas. A match has been found for Tim in America, so it is nice to know that even if the worst case scenario eventuates, there is a plan of action for a cure.

Tim and I were very curious to know if they was a danger period for cancer cells to begin to reproduce again in his body. We were anxious to know what would happen at the end of all the oral chemo and if that might be a time to be on alert for symptoms. Prof Grigg explained to Tim that the cancer cells could begin to reproduce at any time even whilst taking chemo. However, in Tim's case, it has been for quite some time that his body has been producing normal, healthy cells, and because of this he estimates Tim has a 20% chance of the cancer rearing it ugly head again, but the percentage drops the longer he stays clear. He also explained to Tim that most adult patients do not make it through the intensive intravenous chemotherapy phase that he went through last year. In fact he labelled Tim as his NO. 1 draft pick!! He is in the top 10% of patients world wide to get through his treatment protocol to present. An absolutely brilliant accomplishment and a true testament to his positive frame of mind.

This news has helped subside his daily side effects and given Tim an enormous boost and the will to continue with the treatment for a further 18 months.

He is thoroughly enjoying the Gawler program and gaining so much from Seikan, who facilitates the course. He is a wealth of health knowledge and has so much spiritual wisdom that Tim is completely inspired and energized at the completion of every session. John has thoroughly enjoyed and benefited from being in the presence of Seikan (and somehow I think the small group might benefit from having the Hamilton lads in there to share). It is so wonderful for father and son to bond and connect in such a special way...

If you did happen to watch the documentary on Jim Stynes, then you have seen a snippet into our world too. Tim and Jim have travelled a very similar journey, in fact so similar that it was difficult for us to watch. Even though they are being treated for very different cancers, they have both chosen to give themselves the very best chance at recovery through integrating their treatment (white coat & natural therapies) and they both have that incredible frame of mind. As hard as it was for us to watch, we were completely inspired by the Stynes family and the dedicated support of his friends especially Jules. That type of support goes a long way and is paramount to the recovery of a patient.

I hope that you are all aware that you are Tim's secret weapon.

Thank you......

Andi



Thursday, August 12, 2010

Hi everyone,

We have had an exciting time since my last update.

Thanks to the generosity of Danie & Jo Stammis, Hendy & Steve Moodie and Barb & John we were able to trip up north and escape the freezing cold of winter in Melbourne for just over 2 weeks!

We took the kids to Darwin for 5 days and stayed with our friends Hendy & Steve in the beautiful Fannie Bay. Darwin was sensational - 32 degrees everyday and heaps of super fun activities for us all (from baby croc handling to 10 pin bowling)! Tim coped with the heat well as it did cool down at night which was a relief!

From Darwin we flew to Bali and stayed at the delightful Honeymoon Guest House in Ubud. This is Barb & John’s regular haunt and we were very glad to be met by them both when we arrived in Ubud.

Bali was a cultural shock for me at initially as this was my first visit to an Asian country. My jaw dropped in disbelief on the taxi ride from Denpasar to Ubud as I watched the chaos unfold on the road before me. Motorbikes everywhere darting in and out, most with no helmets, some with a family of 4 squashed on (baby attached by sling!) and all, it seemed, with a lot of patience and consideration of other motorists…so incredibly we arrived at our destination, perfectly safe!

Bali was a real time for healing for Tim. He found space for daily meditation (lucky to have the guru on hand!), had regular massages, was able to swim (hooray! no PICC line) and also enjoyed some relaxation and reading by the pool. It took him some time to adjust and let go (he was concerned about getting sick from the water or picking up something from somewhere) but when he finally embraced his surrounds, he loved every second of an unforgettable family holiday. He even hired a motorbike for two days...much to my horror!! Another wish now ticked off the 'to do' list...(thank goodness!!)

We were very lucky to have the magical experience. Joshua and Benjamin travelled perfectly, loved both Darwin and Bali and were no trouble at all. They were in the pool most days from sun up to sun down and managed to dodge the dreaded Bali belly.....(Tim & I not so lucky....only a mild case though!)

Tim met with Dr. Turner last week and the good news continues. He is making good very good progress on the chemo tablets. He is now on the highest dosage and managing this well. Same old side effects, but they are becoming a way of life. Dr. Turner commented this visit that Tim's liver and kidneys are showing signs of repair, which is amazing considering he is still on treatment daily. This was some very positive news.

Tim has tried to have a beer, but unfortunately his body is completely rejecting alcohol at this stage. One stubbie = massive headache and knocks him for 6, so he has decided that it just isn't worth it.

This week we booked Tim into the Gawler 8 week follow up course which will be run by Seikan the Zen Monk. This time John will go as Tim's support person which is fantastic. The 'Living Well' program, aims to develop, deepen, and share healing methods and experiences through an interactive support group program. It will run once per week on Thursday mornings at the new Gawler Centre in Hawthorn, starting the 2nd of Sept. As you can imagine both Tim and John are looking forward to this and in particular Tim, as he faces new challenges in adjusting to his new life. A friend and cancer survivor shared with Tim the difficulties she had in knowing when her cancer ended and she began again. Tim identifies with this comment well as he deals with a closer to 'normal' life again, on the maintenance phase of the treatment. Tim does have moments when he has flashbacks to his diagnoses and some dark times in the oncology ward, but he is beginning to move on and leave these horrible memories behind. The 'Living Well' program has come up at perfect time for Tim and I know he will gain so much from attending.

As for me, I am enjoying my teaching and finally feel like I am back into the swing of things again. I love my time with the boys and adore watching them thrive. Joshua is doing very well at school, loving Auskick and has just taken up basketball which he takes as seriously as the former.....and that's intense! Ben is a friendly chatterbox who talks to everyone he sees. He is following in the exact footsteps as his big brother and he is very excited about starting kinder next year. How time flys!

Hopefully the blog updates will remain infrequent from now on......as they say, 'No news is good news.'

Love Andi


Thursday, June 24, 2010

Update 24/06/10

Hi everyone,

Tim saw his Haem. specialist last week and the report again is very good. His blood counts were good, so this has meant another increase in the dosage of daily oral chemo. He seems to be managing this well the only side effects are fatigue, neuropathy in his feet, occasional headaches and nausea. The chemotherapy has damaged the nerve endings in his feet and he does suffer from a horrible numbness, tingling and pain in his feet. This could be permanent, but it may go over time. Tim finds it quite uncomfortable, as there is no relief from it, but he feels it is a small price to pay considering...

We have just discovered that Robbie, the fellow leukemia sufferer that Tim made great friends with, died in January. As I may have mentioned in an earlier blog, Robbie's cancer had spread to his spine and left him a paraplegic late last year. He was receiving treatment at Royal Talbert in Kew and this is where Tim made contact with him over the phone briefly, but he was unable to speak for long. We had been concerned for his welfare for some time and we were devastated to hear this news last week. He was a tremendous guy, who we thought would get through this, as he was positive he would. Even though we had feared the worst for him, as he had not been in touch, we were still so very shocked and upset.

Tim has still been able to maintain many of the Gawler principles that we learnt on the retreat. His diet is excellent, he still juices and meditates regularly and has a fabulous frame of mind ( which is amazing, considering the passing of Robbie and now 7 of our fellow Gawler colleagues). He has really turned his life around and has been 100% committed to getting himself well again. I still sometimes have a little cry, when I think back to the day of his diagnoses and all the subsequent complications with almost every organ in his body. He has certainly defied the odds and sometimes I cant believe he is still here....and he looks better than ever. I think he is better than ever in every way, so for that I feel very lucky.

Thank you for all your continued support.

All my love,

Andi

Friday, May 14, 2010

Update 14/05/10

Hi everyone,

Tim has just had another great report from Dr. Turner this week! He could not have asked for a better birthday present on Wednesday, when Turner gave him the good news that he doesn't have to have any more intrathecal chemotherapy (that is the chemo injected into his spine!). An executive decision was made.....all parties feeling that it was a bit of over kill at this stage, considering that his previous bone marrow biopsy's and CNS fluid has been clear for some time now. Tim is relieved about this as he really found the procedure so distressing.

Tim did notice the impact of the increased oral chemo dosage this last month. He has suffered some nausea and headaches, but most of all he has struggled with fatigue. It is all ok and nowhere near as debilitating as it had been in the induction, re induction and consolidation phases of the protocol. His blood counts have dropped, so his immunity is still compromised and all the necessary precautions are still in place in terms of hygiene and keeping some distance from people with colds and viruses etc. His drop in red blood cells explain the extreme fatigue he experiences in the afternoon. This is just how it will be for the next 2 years. It is still very necessary for him to have a huge amount of rest...something that I know he will struggle with as time goes on. But, there have been days where he can literally not keep his eyes open by about 2pm...so he has no choice. He must nap/rest.

By the way, he is now at week 46 of the protocol. I am not sure how many more to go...but I am thinking about 90!!!! We are really getting there...

We took the boys fishing for the long week end. One of the things on Tim's 'to do' list was to take the boys to Eildon to fish in the pondage. So, we just did it! (ps. the best he has looked in a long time...don't you think?)

Love to everyone,

Andi


Tuesday, March 23, 2010

Update 23/3/10

Hi everyone,

Well Tim finally finished all his IV chemo, however he feels he is really 'limping to the finish line.'

As expected, the final round of chemo left him bed bound with nausea, headaches and and in a fair amount of distress. I won't go into all the details, but briefly let you know that Tim had a terrible experience with a lumbar puncture this time round, where he was in so much pain and anxiety that he was in tears for fear he may have walked his last steps. Thank goodness the numbness in his legs disappeared however, action needed to be taken. We spent some time talking to other doctors and eventually went to see another haematologist outside the Austin for a second opinion. It was a great exercise to gain further clarification on the future treatment Tim requires. Unfortunately, lumbar punctures are a necessary part of the next 2 years, as the CNS (central nervous system) is a common place for relapse. The Austin has been great in addressing our concerns and have promised Tim that he can request his preferred doctor for the procedure in the future.

As we thought, Tim did require 4 blood transfusions and 3 platelet transfusions after the final round of IV chemo. It really did take him some time to bounce back and finally have that PICC line removed from his arm!!! Hooray!! He was kissed by all the nurses and applauded by the fellow patients when he walked from Day Onc for the final time. Certainly, a huge milestone! We are all so proud of what he has achieved. It is amazing what the medical world can do now with all the treatments on offer to help save a life. All that along with his very special, positive frame of mind has got him to still being here right now and with lots of hope for a cancer free future. We are reminded how lucky we are to have Tim responding to all forms of treatment so well, since hearing that more of our Gawler friends have passed. Four beautiful husbands and fathers and one gorgeous wife could no longer maintain the battle. It has been very difficult for Tim and I to say goodbye to 5 friends in the space of 2 months. We have had to mourn and then refocus back on our goal. A complete emotional roller coaster.

Tim has now recommenced chemo daily, but in tablet form. He has struggled more than he anticipated, having headaches and nausea. He has a total of 9 chemotherapy tablets over 7 days, comprising of 2 x methotrexate and 7 x mercaptopurine. These tablets are now a way of daily life for the next 2 years. We are hoping that Tim's recent side effects are part of an adjustment phase and not an indication how how he might feel over the next two years. Although, Doctor Turner has pre warned that if Tim copes well with the tablets and his bloods are all good, then an increase in dose is likely.
Just have to take it one day at a time...

Well, that is a wrap.

Lots of love,

Andi

Tuesday, February 9, 2010

Hi All,


January was a difficult month for us all. Tim struggled with the latest round of chemo. His hair has fallen out again and it knocked him for six and left him struggling to keep his mental edge. Chronic nausea daily with the pounding headaches led to Tim having a break down of sorts late Jan. The tears flowed and flowed as he has had enough. Thirteen months now of consistent treatment that makes him feel so unwell, yet has kept him alive. I just don't know how he has done it. He fronts up to Day Oncology almost daily with a disposition that is truly remarkable. He is still upbeat, humorous and so very kind to all that he encounters...still...of course...but he is tired . He wants to be a dad with energy, he wants to work, he wants to spend time with his loved ones and not feel like shit. Hopefully, these intense side effects will end with the intense treatment. This week he is having a repeat of the treatment in January, 10 infusions of chemo and a lumbar puncture and then the PICC line will be removed, all going well and he doesn't require a blood or platelet transfusion.

Joshua started school last week, which was a thrill for us both. He has loved every second of school life and is extremely happy. I returned to Burke Hall too, which has been fabulous to be back doing what I love and getting my mind off cancer for a while.

Thanks everyone,

Love Andi




Tuesday, January 19, 2010

Update 19/01/10

Hi All,

We have had a very hectic couple of weeks. Tim recommenced chemo on the 4th of Jan. The very intense week began with 2 infusions of chemo through the PICC Line and a lumbar puncture on the first day and then continued daily with two infusions of chemo (Cytarabine and Teniposide) for a a further 4 days. We sincerely thank Macca, John, Dale, Callum and Sarah for taking the time out to sit with Tim during treatment. The days are long and depressing and having company makes the time go much faster and helps to relieve the angst and sadness that can consume you in Day Oncology. Tim honestly feels this whole journey is one big mind game and having distractions in day onc gives him a mental edge....even though he is terribly forgetful at the moment!

All the usual side effects presented post treatment and Tim laid very low for 2 weeks. This time Tim seemed to be knocked about more and upon reflection we feel the heat had a big impact on his well being. It was difficult for Tim to find comfort on these days, even when indoors and horizontal with the air con working overtime. Tim finally turned a corner when the cool change came through and has been in a better way since.

We have unfortunately had news since the New Year clocked over, that two of our 'Gawler' friends have passed. The news hit us both hard, as we have shared in their journey and left the retreat feeling empowered and with the hope that everyone can be healed. Unfortunately, our two lovely friends were very, very sick and we did know at the time of the retreat that this was something that we were to experience...the loss of friends. Very difficult to deal with, but it was pleasing to hear that both Brian and Karen went peacefully and are now pain free.

We are counting down the days to Joshua starting school. He is very excited and prepared. Got the uniform, been fitted for shoes, acquired all the stationary (can you believe preppies need a calculator!), is in a class with his two best mates and has a lovely teacher. I am also looking forward to my return to the classroom (drama studio!) and am currently in full swing of the College's production which hits the stage in March.

We are feeling positive that this year will bring much more happiness than the last. It is so nice that some aspects of our life are now relatively normal. Tim will have a repeat of the treatment he just received in the first week of Feb and then the PICC line will be removed...finally.

Thanks to everyone for their continued support. The 6th of January marked 12 months to the day since Tim's diagnoses. We are getting there slowly and are extremely grateful to all our family and friends who have stuck by our little family the entire time. It has been a roller coaster and I am personally so grateful to all my beautiful friends who have taken it upon themselves to do special gestures to help bring a smile to my face. It has been an extraordinary year and I thank you all for having the guts to truly listen to what it is like to live with this disease.

With love,

Andi. xo

Tuesday, December 29, 2009

Update 29/12/09

Hi everyone,

We hope you all had a great Christmas!

Just before Christmas we got the fabulous news that Tim's biopsy result was clear of leukemia and in fact there was evidence of new, healthy cell rejuvenation. So needless to say, we were all very relieved and Tim celebrated with a beer on Christmas day!
( and me with a number of sparklings!)

We had a lovely holiday in Noosa with the kids and arrived back in Melbourne just before Christmas. However we did have a scare from the hospital just as we were at the airport and about to start our holiday. Tim had to have a PICC line redress and blood tests the morning of our flight, which are routine and weekly. However the hospital called to say Tim's neutrophils had dropped and the haem. doctors were very concerned by this. Great...what were we going to do....yep that's right, still go on the holiday! We did have a great time but of course had some worry in the back of our minds (actually it was at the front of mine). So while trying to enjoy the sun, fun and family time, we had many calls from doctors to organise an emergency bone marrow biopsy 12 hours after our return. One doctor did say that his low neutrophils could be an indication of leukemia cells reforming and inhibiting healthy cells. I actually overheard her say that to Tim on the phone, whilst lazing by the pool. Straight away i had that kick in the guts feeling and the shakes. Tim immediately called the Head of Haematology, Dr Paul Turner for some clarification. Dr Turner assured Tim by saying that if he was him he wouldn't worry and that the drop in counts could be due to a very small sniffle he had at the time and when your bone marrow is so suppressed the drops are more dramatic. However, he felt also that it would be good for everyone to have another bone marrow biopsy to make sure. So this, along with Tim's insistence that there is no way he could be feeling this good if leukemic cells were forming in his bone marrow and that fact that he looks a million bucks, we had a great time away and just immersed ourselves in the quality family time. We are blessed to have enjoyed this Christmas. We are reminded constantly of how quickly things can change with this disease, for better and worse. Unfortunately some of our friends from the Gawler retreat have not had great news since the program.

Tim is having another dose of chemo this wednesday (IV and another delightful lumber puncture) which will flaten him for New Year celebrations no doubt. The good news is that this week was supposed to be a 5 day chemo week, but the haem. doctors have decided that one dose is enough. The plan is that this dose is repeated again in 4-5 weeks and then the blessed PICC line is removed!!! HOORAY! Everything is crossed for that going to plan. This means that Tim will have daily chemo in tablet form and 8 weekly lumbar punctures for the following 2 years.

Tim is going to do the 8 week Integration Program run by the Gawler Foundation in Melbourne starting the 8th Feb. This time his dad is going as the support person, as I am returning to work next year. It is a 3 hour session held once a week in Hawthorn run by the Zen Monk, Seikan. I am sure they will both gain so much from the program.

It is certainly a way of life now...to juice, meditate and eat well. We have found a routine that suits us and it is really working well.

We wish everyone all our best for a good new year. Tim and I continue to focus solely on each moment and really live them.

Love and peace,

Andi & Tim

Extra Update 29/12/09 @ 6pm

We had a call from the hospital today and Tim will not be having chemo tomorrow, but will recommence on Monday the 4th. Unfortunately, he will have to have the 5 days of chemo as originally intended.

Tuesday, December 8, 2009

Update 8/12/09

Hi all,

We are travelling well at the moment. Tim is continually being told how well he is looking. The diet and meditation having a massive impact!

Enjoy the recipes below. Tim actually made the crumbed tofu himself! YAY! (& the coleslaw!)

Love Andi

Marinated Tofu with Rice Vermichelli noodles
(Andi's recipe)

I block of Tofu, cubed (3cm)
I clove garlic
1/3 cup tamari
1 tbs honey

1 bunch bok choy
1 carrot chopped
1 large mushroom chopped
1 bunch broccoli
3 spring onions
1/2 cup organic roasted cashews

1 pkt Rice Vermichelli Noodles

Marinate the tofu in tamari, garlic and honey for 1/2 an hour. Place tofu and marinade in a pan with the chopped white ends of the onions. Add carrots, then broccoli, mushrooms, bok choy and cashews and then add a little water (about 1/4 cup) and cook till veggies are tender.

Cover the noodles with boiling water till cooked (about 3-4 minutes). Drain and serve adding the tofu and vegetables on top. Sprinkle with some remaining spring onions.

Crumbed Tofu

500g Tofu cubed (3cm)
1 cup tomato juice
1/4 cup tamari
1/2 cup finely chopped spring onions
2 cups fresh bread crumbs

Mix tomato juice,tamari and spring onions. Marinate tofu cubes for 1 hour. Coat in bread crumbs and cook in moderate oven for about 20 mins.

Serve with a salad. (We do coleslaw or potato salad)

ps. Kids eat these like chicken nuggets!


Coleslaw

1/4 cabbage, finely shredded
1/4 red cabbage, finely shredded
1 large carrot, grated
1 cup finely sliced spring onions
2-3 tbs soy mayonnaise

Mix all ingredients in a large bowl and serve!

Sunday, November 29, 2009

Update 29/11/09

Hi all,

Not too much to report at the moment. Tim is having a break from treatment and enjoying it! He still has to front up to day oncology once a week for a PICC line redress and bloods, which are all on the way up at the moment. We are hopeful that chemo will recommence after Christmas, so that we can enjoy some family time away up north and also enjoy the festive season with our family and friends.

Many have asked us for a few recipes that we enjoy from the Gawler Foundation, so please find a few below. I will try and add a couple to each update.

Also, a BIG thank you to the mystery person, who organised for a box of delicious organic fruit, veg and tea to be delivered to our door from 'Organic Angels'. The produce was just top quality and we are very grateful to who ever it was...(hopefully you read this!)

Love Andi xxoo.

MUESLI

1 cup barley flakes
1 cup rolled rye flakes
1 cup rolled oats
1 cup sultanas or currants
1 cup chopped almonds (bio dynamic)

Pour desired amount in to bowl, then soak the muesli for 2-3 minutes in apple juice ( we use Greenwoods bio dynamic)
Top with milk (Tim has oat milk) but soy or rice can be used too.
Dollop some soy yogurt on top and dust with some cinnamon

BROCCOLI & ALMOND SOUP

4 cups broccoli roughly chopped
1 onion chopped
2 tbs almonds chopped
4 cups water
1/2 cup soy milk
1 vegetable stock cube (or 1 tsp mineral bouillon)

Place onion in pan with water and bring to boil then add broccoli. Cook till soft. Add stock cube and soy milk. Puree. Add almonds just before serving.

RICE PAPER SALAD ROLLS

12 sheets rice paper
6 cups shredded cabbage (red or green)
1 cup fresh mint
1/2 cup french dressing (fat free)
4 cups shredded lettuce
2 cups red capsicum,julienned
2 cups snow peas
alfalfa sprouts
150g tofu

Cut tofu in 12 strips and marinate in 1/2 cup of Tamari (soy sauce) and 1/2 cup of water for 30 mins. Lightly steam cabbage, rinse and cool, then add dressing and mint. Individually, soak the rice paper sheets in warm water till pliable then place on a clean tea towel. Add 1/12 of each ingredient in the centre and roll up, tucking the ends in as you roll. Work one roll at a time.

Fillings may vary and the rolls may be served with a dipping sauce.

ROAST VEGETABLE RISOTTO (Andi's recipe!)

1 cup bio dynamic brown rice
3 cups water
1 zucchini
1 carrot
2 roma tomatoes
1 large mushroom
1 red onion
splash of balsamic vinegar
pinch sea salt
black pepper
grated parmesan

Place rice and water in pan and cook by absorption method. (approx 30 - 45 minutes)
Meanwhile chop all veggies into small cubes, place in an oven dish, splash with vinegar, salt & pepper and bake in oven 150 degrees (fan forced). When carrots are cooked, add vegetables and juice to the rice, mix in some grated parmesan and serve!


BONN APPETITE EVERYONE! ( and also, in all recipes above we use organic produce where possible)

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From the Admin:

Howdy all! Just a quick bit of boring blog management - currently the 'donate now' button on the right works by sending the amount you donate through to paypal and then on to an account that was set up for Tim and Andi to use. I've been letting these payments go through to them anonymously, but Andi has now asked for details when someone donates so she and Tim and thank whoever was feeling generous. She can't help herself!
So, if you do donate and want it to be anonymous, just send an email to the administrator - thehamiltonfamilyblog@gmail.com - letting me know and I'll send the payment through anonymously as I've been doing, otherwise I'll let Tim and Andi know who you are!

Thursday, November 12, 2009

Update 12/11/09

Hi everyone,

We are now home from our ten day retreat at Ian Gawler's Yarra Valley Living Centre. We are refreshed, energised, well informed and......almost vegan! Each day was jam packed full of interesting and dynamic concepts, discussions and tutorials. Our days began at 7:45 am with meditation and ended in the same way at almost 9pm! In between was filled with tutorials covering all of the following topics; meditation, diet & nutrition, brain training, pain management, food preparation, causes of cancer, dynamic contemplation, cracking the medical code, living & dying, forgiveness, healing the past, healing & imagery, spirituality & healing, mind- body medicine, connections through voice and awareness through movement. It was extremely 'full on' and confronting, but at the same time so engaging and completely fascinating. As you can imagine, from all the information given to us, not only did we learn so much about cancer (causes, treatments, management & prevention) but also so much about ourselves. Luckily Tim and I have no problem being open and willing to share so much of ourselves. This enabled us to gain maximum benefit from all the group discussions and come to some massive realisations.

Other features of the residential program included yoga, deep relaxation, massage, yoga breathing, qigong ( tai chi), garden tours ( featuring a demonstration of constructing a 'no dig' vegetable garden) and of course the main focus meditation (which we were guided through several times a day).

The property is spectacular and we were so fortunate to have beautiful weather to stroll around the gardens and see the wildlife up close and personal, namely a mob of kangaroos, a couple of deer and the resident wombat and koala. The bird life was magical and everyday I spotted a bunny hopping across the lane. We really did feel like we had escaped the 'real world'. It is hard to believe that we survived 10 days without meat or any animal products, no tv, no newspapers, no alcohol, no caffeine and no children!!!!! Funnily enough we did it well.....however we did sneak in a phone call to the kids everyday!

We met wonderful people, from all the facilitators to the other sufferers and support people. There were 40 of us in total. Tim and I were the youngest after a lovely man from N.Z (aged 26) had to leave on day 4 as he was in severe pain. Like us, he too had two little boys, 3 and 15 months. Unfortunately his health was not good and we found out later that his terrible pain was in fact a spread to his jaw and shoulder. The group felt so sad to see him go, however it was obvious in the end that he needed urgent medical attention. Most of the participants were from interstate and N.Z and all at various stages with their disease, some currently cancer free, some with active cancer but under control, some palliative. The people were so friendly, happy and fun loving that at times you did forget that everyone was sick. But then a wig was removed and a painful grimace revealed to remind us of why we were all there....

So what will change in the lives of Mr. Tim and Andrea Hamilton??????

Firstly, would have to be the importance of finding the space and time everyday to still the mind through meditation. We have learnt that time put aside for this everyday has enormous benefits, especially for boosting the immune system, creating a natural balance within and giving the mind a rest. This deep stillness where the mind is free of reaction and free of judgement creates a clear mind, where stress levels decrease and good choices are more likely to be made.

Since living in the real world again, we have not been able to meditate as frequently as we had hoped ( which was twice a day) so once a day is a more realistic goal, given we have such a busy life with the children.

Secondly, is the importance of a nutritional wholefood diet. The diet at Gawler's is essentially vegan, with a few extra restrictions including salt, refined sugar and most oils ( except flaxseed and a tiny amount of olive oil). It is an incredibly restrictive diet, however, if your body is dealing with active cancer, there is a very good reason for it. Off the menu was beef, chicken, fish, eggs, butter or marg, black tea, coffee, yogurt, cream, cows milk ,cheese, alcohol and very little fruit. So really, what ate for 10 days was rolled oats, dark rye spelt flour bread, brown rice and pasta, vegetables and salads. Added to this was the vital part of the Gawler diet, being 7 fresh vegetable juices a day. The idea behind such a diet is to create a cancer unfriendly environment within the body. Cancer apparently feeds off fats and sugars, so it was made very important to us to have next to none in your diet when dealing with active cancer. Cancer is hindered by high cellular oxygen levels (which can be found in juices ), high potassium/low sodium levels ( bananas are good and no salt) and a high alkaline/ low acid balance ( caution with oranges and acid foods). Foods that have anti cancer properties include: (there are loads more) cabbage, pomegranate, raspberries, turmeric, tomato and broccoli, so it is important to add as many of these in as possible.

Tim found the diet very difficult to begin with, but I am very pleased to say having been home one week now, that he has maintained a very healthy diet and has maintained the dramatic changes that were made on the retreat. For the most part we intend to adopt a vegetable based, whole food diet, however we do intend to still eat a small amount of meat as long as it is not processed like some sausages and salami.

Tim starts the day now with an organic home made wholegrain muesli that includes rye flakes, rolled barley, rolled oats, almonds and sultanas with oat milk and a carrot juice. Lunch has varied from salad sandwiches on organic spelt rye bread to rice paper rolls to sushi to miso soup with a pomegranate juice and dinner usually a consists of a pasta, rice or noodle based dish with vegetables and/or tofu. These changes are big for Tim who prior to getting sick, had no breakfast, a coffee at 7.30am, a couple of dim sims at 10.30, lunch varied from a pie, sandwich or schnitzel burger, a couple of beers at knock off, home for dinner and then a couple more beers. I am so pleased to see Tim care for himself in such a healthier way and make these changes to ensure he gives himself the best opportunity to kick cancer for good.

We sincerely hope that you won't be too scared to invite us for a meal again!! We still feel it is important to live life and enjoy and indulge from time to time!

There is no doubt that our experience at Yarra Junction was life changing and has left a remarkable impression on us both. Dr Ian Gawler is truly inspirational, unique and the most disciplined human being I have ever encountered. He speaks with such honesty and insight that you feel compelled to record everything he says. It is no wonder he defied the odds to go on to live a long, healthy and enriching life. His positive, calm, intuitive and extremely determined persona is inspirational and a force to be reckoned with. Cancer had no chance with him and I am feeling very positive that Tim will find himself in a very similar position. Blood tests on Monday revealed a rise in all counts which really validates the integrated approach.

Tim has recommenced chemo this week and I am also very happy to let you all know that he has had another great bone marrow biopsy result!

Hope you like the photos below. The boys didn't miss us one little bit!!!!


Thursday, October 15, 2009

Update 15/10/09

Hi All,

Well, Tim has finally been able to resume treatment this week. This was after much discussion and a meeting between the oncologists and haematologists at the Austin, where it was decided that Tim would resume the treatment protocol, but the dosage of all the chemotherapy to be reduced by fifty percent. We have decided upon this strategy as a way of moving forward and receiving treatment. Otherwise, we were falling into the cycle of having one full dose of chemotherapy that was completely wiping out all cell production in his bone marrow and being unable to have treatment for several weeks. As you can imagine, it is has been a huge mental challenge for Tim, where the continual 'rejection' at Day Oncology has been depressing. We see this move as very positive, a) because it is a step closer to the end of the protocol and b) that he does have the 'luxury' of being a candidate for a reduction in chemo.

So, Tim recommenced yesterday, with two chemotherapy drugs (Cyclophosphamide and Cytarabine) administered through his PICC, three drugs ( methotrexate, cytarabine and dexamethasone) intrathecally (into the spine) and one drug (Thioguanine) orally. Just a nice way to ease him back into it all!!!! Boy oh Boy !! He is due to have cytarabine daily this week as well as the chemo tablets for 14 days straight, all at half the dose originally prescribed.

Tim, so far, has noticed that the side effects are only half as bad. This is great. Usually, after a full dose of what Tim had yesterday, he would be bed bound for a couple of weeks. But on the reduced dosage, he is able to sit up, with mild nausea and headaches. So this does seem a promising move forward.

We are counting down the days till Ian Gawler's Residential Life & Living Program. It will mean a short break in treatment, but the doctors at the Austin are very happy for Tim to go and compliment his medical treatment with the natural therapies offered. The two main focuses of the program will be meditation and diet and we are both so keen to participate and immerse ourselves in some natural healing. We will miss the kids like crazy, but see this as such a valuable opportunity. The kids know we are going to "Ian's" or "the man with one leg" to help daddy get better and they are extremely excited about all the time they will be spending with nanny and poppy and nanna and pa! I think we are all pretty lucky really!

So glad to finally have some news for you all.

Take care,

Love Andi

Wednesday, September 16, 2009

Update 16/09/09

Hi,

Still not a lot to report as Tim has not been able to progress any further with the protocol since my last update. His red and white blood counts are great, it is just his platelets that are only ever so slightly low, but this means he cannot have chemo. We were very surprised by this, as he looks and feels well....but whacha gunna do??!! ....Just go with the flow....... This particular round of chemo was only supposed to take four weeks....we are now at week 10 and it is not complete. It certainly looks as though the re induction phase, which we were hoping to be through with by early November, will work its way into the first few months of 2010.

When Tim has felt well, he has enjoyed getting out into the spring air and pottering in our garden. A small veggie patch which we have dreamt about doing for so long, has finally come to fruition.....only to be enjoyed even more so by Riley (GGgggrrrrrrr). Tim is doing a lot of meditation to still that racing mind of his. I am happy to say that it is working and he is looking more relaxed, but there is still often a moment when sheer frustration kicks in at the inability to lead a normal life. He misses his work, his friends, being spontaneous and also misses being able to plan ahead. The biggest realisation for us all has been the importance of focusing solely on the moment. It makes it so much easier to live.

Fingers crossed I have news of some progress for you all.

Love and smiles from us all,

Andi

Monday, September 7, 2009

Update 7/9/09

Apologies for the break since my last update. This is because Tim was
only able to resume chemotherapy last Tuesday as his blood counts have
been taking much longer to recover after chemo. Since my last update
Tim has had two blood transfusions and also a potassium infusion as
blood tests revealed a deficiency in this area. A potassium tablet
has been added to list of daily medications and so has prednisolone,
which is the drug that gives him a puffy face and an enormous
appetite.

Tim enjoyed his Fathers Day, the boys and I spoiled him with lots of
presents, kisses and cuddles. It was great that he felt well enough
to enjoy the day and some precious family time.

Looking ahead, Tim has chemo on Tuesday this week and then next week
begins daily IV chemo for 5 days straight and a lumbar puncture. A
break is scheduled after this to allow his body to recover.

Hope you enjoy the photos of Joshua's Fathers Day creations!

Love Andi


Friday, August 21, 2009

Update 21/08/09

Hi everyone,

Not too much news to report at the moment. Tim has been having weekly chemo, but unfortunately this week, was not able to have it as his blood counts were too low. We are only up to week 22 of the protocol, ( it has been 33 weeks since diagnoses) as we have had so many set backs, delays and inclusion of radio therapy. Week 24 sees the regime step it up a notch to intense daily chemo again and this will last till week 34 of the protocol. So really, Tim is just over the half way way mark of intense treatment. A very intense 3 months still to be had. According to the protocol Tim still has 110 weeks of treatment to go..........

Tim's hair is starting to grow back, at this stage we can't make out whether it is grey or blonde fluff.....but it is certainly not red! ( although his beard is!)

Should have more news next week as Tim and I are hopefully going to have a meeting/review with his haematologist and head oncologist. Even though the process is painfully slow, Tim is still making steady progress.

Bye for now,
love Andi

Monday, August 10, 2009

Update 10/08/09

Hi everyone,

Tim was able to recommence treatment last Thursday. This consisted of IV chemo on Thursday and a lumbar puncture (LP - chemo injected into his spine) on Friday. He said the familiar 'chemo feeling' came back straight away and he could feel the effects of it running through his body. The LP, as it has done so in the past, has knocked him out. The only relief from his throbbing head is to lie down, but when horizontal, he has pains in his back and legs. No win. Unfortunately, we have a long way to go with the LP's. They are integral to the maintenance phase of the treatment protocol, which is the next phase after this one. Tim will be having an LP every 8 weeks for 2 years when the maintenance phase begins....we hope this will be in November. The LP's are so vital as they are to prevent a spread or relapse to the CNS (central nervous system). Apparently, the CNS can be a 'hot spot' for relapse. Tim was fortunate that there was no involvement with the CNS when he was first diagnosed. Seeing Tim struggle with his symptoms has been hard. Tim and I discussed this morning, how on earth could a child cope with all this? Knowing that his disease is more commonly found in children, gives us some perspective and some extra courage.

I have been finding it all very hard to cope with lately. I am tired, sick and tired, tired and sad, over it. The best thing I did was have a good day of crying last Sunday...yep in front of the kids too. It seems to have lightened a load. Also, highlighted the power of positive thinking. I believe that is the key.

Strangely, it has been a good thing for us all, to have Tim back on track with treatment. It gives us all a focus. Makes the light at the end of the very long tunnel, a little brighter.

That's it for now........oh, except Tim did shave off that feral beard!!! Yay!

Love Andi

Monday, August 3, 2009

Update 3/8/09

Hi everyone,

After 7 nights in hospital, Tim was able to leave but unfortunately not come home. As the boys and I were sick, Tim had to spend another 4 nights at my parents home until we were on the improve. It has been a very difficult time and even though Tim is now home, he is in the worst shape he has ever been. He is suffering constant nausea, head aches, dizziness (has almost fainted on me!) leg pain, stomach cramps....the list goes on. He has no energy and has finally lost his spark. It has been very hard/sad/devastating for me to see him like this......not even an attempt at a bad joke!! His spirits lifted slightly when finally allowed to see his children and also when he layed eyes on his beard. Doctors are baffled by his poor disposition as his blood counts are all up and rising..on paper he is ready to move on to the next phase of treatment. On Tuesday he will be reassessed. If there is no improvement in his well being he will be readmitted for observations and if he does improve he will recommence chemo this Thursday.

I have found an excellent medical website that examines Tim's exact condition. It also discusses and clarifies the dilemma over whether Tim has lymphoma or leukemia. As you will read, the World Health Organisation recently unified the disease as T cell lymphoblastic lymphoma/leukemia. This has helped us to understand why some doctors refer to Tim as having leukemia.

Please take the time to read the complete study: Background, Diagnoses, Treatment & Follow up. It is accurate, up to date and informative.

http://emedicine.medscape.com/article/203556-overview


Love Andi.

Friday, July 24, 2009

Update 24/7/09

Hi everyone,

We have had a set back..... Tim is back in hospital. Tim presented a slight temperature when having his routine PICC line redress on Tuesday. Doctors were concerned by this and ordered immediate blood tests and cultures. Unfortunately, Tim's neutrophils had dropped again and he has become neutropenic. Blood culture test results have indicated an infection in his body and it looks as though the infection is primarily in is in his PICC line. This means that the PICC in his left arm will have to come out and a new one put into his right.

Tim is coping incredibly well with all this. So much easier to deal with when you have been through it all before. On admission to the ward on Tuesday night when the nurse asked if he wore hearing aids he responded with "what?" and is English your first language, he said "Si". MMMMmmmm. The nurse thought he was hilarious!!!!!! (Note the sarcasm!!)

More to come, no doubt.

Love Andi xx.