Tim has just had another great report from Dr. Turner this week! He could not have asked for a better birthday present on Wednesday, when Turner gave him the good news that he doesn't have to have any more intrathecal chemotherapy (that is the chemo injected into his spine!). An executive decision was made.....all parties feeling that it was a bit of over kill at this stage, considering that his previous bone marrow biopsy's and CNS fluid has been clear for some time now. Tim is relieved about this as he really found the procedure so distressing.
Tim did notice the impact of the increased oral chemo dosage this last month. He has suffered some nausea and headaches, but most of all he has struggled with fatigue. It is all ok and nowhere near as debilitating as it had been in the induction, re induction and consolidation phases of the protocol. His blood counts have dropped, so his immunity is still compromised and all the necessary precautions are still in place in terms of hygiene and keeping some distance from people with colds and viruses etc. His drop in red blood cells explain the extreme fatigue he experiences in the afternoon. This is just how it will be for the next 2 years. It is still very necessary for him to have a huge amount of rest...something that I know he will struggle with as time goes on. But, there have been days where he can literally not keep his eyes open by about 2pm...so he has no choice. He must nap/rest.
By the way, he is now at week 46 of the protocol. I am not sure how many more to go...but I am thinking about 90!!!! We are really getting there...
We took the boys fishing for the long week end. One of the things on Tim's 'to do' list was to take the boys to Eildon to fish in the pondage. So, we just did it! (ps. the best he has looked in a long time...don't you think?)
Love to everyone,
Andi
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