Update 16/09/09

Hi,

Still not a lot to report as Tim has not been able to progress any further with the protocol since my last update. His red and white blood counts are great, it is just his platelets that are only ever so slightly low, but this means he cannot have chemo. We were very surprised by this, as he looks and feels well....but whacha gunna do??!! ....Just go with the flow....... This particular round of chemo was only supposed to take four weeks....we are now at week 10 and it is not complete. It certainly looks as though the re induction phase, which we were hoping to be through with by early November, will work its way into the first few months of 2010.

When Tim has felt well, he has enjoyed getting out into the spring air and pottering in our garden. A small veggie patch which we have dreamt about doing for so long, has finally come to fruition.....only to be enjoyed even more so by Riley (GGgggrrrrrrr). Tim is doing a lot of meditation to still that racing mind of his. I am happy to say that it is working and he is looking more relaxed, but there is still often a moment when sheer frustration kicks in at the inability to lead a normal life. He misses his work, his friends, being spontaneous and also misses being able to plan ahead. The biggest realisation for us all has been the importance of focusing solely on the moment. It makes it so much easier to live.

Fingers crossed I have news of some progress for you all.

Love and smiles from us all,

Andi

Update 7/9/09

Apologies for the break since my last update. This is because Tim was
only able to resume chemotherapy last Tuesday as his blood counts have
been taking much longer to recover after chemo. Since my last update
Tim has had two blood transfusions and also a potassium infusion as
blood tests revealed a deficiency in this area. A potassium tablet
has been added to list of daily medications and so has prednisolone,
which is the drug that gives him a puffy face and an enormous
appetite.

Tim enjoyed his Fathers Day, the boys and I spoiled him with lots of
presents, kisses and cuddles. It was great that he felt well enough
to enjoy the day and some precious family time.

Looking ahead, Tim has chemo on Tuesday this week and then next week
begins daily IV chemo for 5 days straight and a lumbar puncture. A
break is scheduled after this to allow his body to recover.

Hope you enjoy the photos of Joshua's Fathers Day creations!

Love Andi